{"id":133629,"date":"2025-06-08T04:20:00","date_gmt":"2025-06-08T01:20:00","guid":{"rendered":"https:\/\/buletin.de\/bucuresti\/?p=133629"},"modified":"2025-06-07T10:51:12","modified_gmt":"2025-06-07T07:51:12","slug":"parcul-alexandru-ioan-cuza","status":"publish","type":"post","link":"https:\/\/buletin.de\/bucuresti\/parcul-alexandru-ioan-cuza\/","title":{"rendered":"F\u00e2nt\u00e2nile din parcul Alexandru Ioan Cuza vor fi iluminate\u00a0\u00een turcoaz, pe 9 iunie. Va fi marcat\u0103 Ziua de Con\u0219tientizare a bolii Batten"},"content":{"rendered":"\n<p><strong>F\u00e2nt\u00e2nile arteziene din parcul Alexandru Ioan Cuza vor fi iluminate\u00a0luni, 9 iunie, \u00een culoarea turcoaz. \u00cen acest fel, se va marca Ziua Interna\u021bional\u0103 de Con\u0219tientizare a bolii Batten.<\/strong><\/p>\n\n\n\n<p>Evenimentul din parcul Alexandru Ioan Cuza va atrage aten\u021bia asupra \u00eencerc\u0103rilor prin care trec pacien\u021bii diagnostica\u021bi cu boli rare, cum este Batten.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-boala-batten\">Boala Batten<\/h2>\n\n\n\n<p>Boala <a href=\"https:\/\/batten.ro\/ce-este-boala-batten\/descriere\/\">Batten <\/a>este o afec\u021biune genetic\u0103 neurodegenerativ\u0103 rar\u0103, care apare \u00een coplil\u0103rie.<\/p>\n\n\n\n<p>Printre simptomele acestei boli se num\u0103r\u0103: tulbur\u0103ri de vedere care pot merge p\u00e2n\u0103 la orbire, crize epileptice, deficit motor progresiv, dificultatea coordon\u0103rii mi\u0219c\u0103rilor, tulbur\u0103ri cognitive care pot ajunge la demen\u021b\u0103, tulbur\u0103ri de limbaj. <\/p>\n\n\n\n<p>Statisticile arat\u0103 c\u0103 pentru 95% dintre bolile rare nu exist\u0103 tratament aprobat, iar \u00een 5% dintre cazurile \u00een care exist\u0103 tratament, costurilor sunt foarte mari. &nbsp;<\/p>\n\n\n\n<p><strong>CITE\u0218TE \u0218I:<\/strong> <a href=\"https:\/\/buletin.de\/bucuresti\/scoala-victor-brauner\/\">Sector 3 | \u0218coala Victor Brauner se deschide \u00een toamn\u0103<\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"h-fantanile-arteziene-din-parcul-alexandru-ioan-cuza-repornesc-pe-9-mai\">F\u00e2nt\u00e2nile arteziene din parcul \u201eAlexandru Ioan Cuza\u201d repornesc pe 9 mai<\/h2>\n\n\n\n<p><strong>F\u00e2nt\u00e2nile arteziene din parcul \u201eAlexandru Ioan Cuza\u201d din Sectorul 3  au fost repornite \u00eencep\u00e2nd din 9 mai. \u00cen timpul zilei, spectacolele acvatice vor func\u021biona de la ora 12:00, zilnic p\u00e2n\u0103 \u00een luna noiembrie.<\/strong><\/p>\n\n\n\n<p>Seara, \u00een fiecare s\u0103pt\u0103m\u00e2n\u0103, de joi p\u00e2n\u0103 duminic\u0103, f\u00e2nt\u00e2nile arteziene vor oferi c\u00e2te dou\u0103 show-uri de lumini \u0219i muzic\u0103, dup\u0103 urm\u0103torul program&nbsp;:<\/p>\n\n\n\n<p><strong>CITE\u0218TE \u0218I:<\/strong> <a href=\"https:\/\/buletin.de\/bucuresti\/sector-3-un-complex-educational-ar-putea-fi-construit-in-zona-theodor-pallady-consiliul-local-a-aprobat-constituirea-unei-comisii-pentru-cumpararea-terenului\/\">Sector 3 |\u00a0Un complex educa\u0163ional ar putea fi construit \u00een zona Theodor Pallady. Consiliul Local a aprobat constituirea unei comisii pentru cump\u0103rarea terenului<\/a><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>iunie- 21:30, 22;30;<\/li>\n\n\n\n<li>iulie- 21:45, 22:30;<\/li>\n\n\n\n<li>august- 21;00, 22:00;<\/li>\n\n\n\n<li>septembrie, octombrie&nbsp;: 20:00, 21:00;<\/li>\n\n\n\n<li>noiembrie- 19:00, 20:00.<\/li>\n<\/ul>\n\n\n\n<p>Fiecare program va dura aproximativ 30 de minute.<\/p>\n\n\n\n<p>F\u00e2nt\u00e2nile arteziene din parcul Alexandru Ioan Cuza au fost inaugurate anul trecut, pe 1 Iunie.<\/p>\n\n\n\n<p><strong>CITE\u0218TE \u0218I:<\/strong> <a href=\"https:\/\/buletin.de\/bucuresti\/sector-3-consultare-publica-pentru-modernizarea-parcului-ior-alei-din-lemn-supraveghere-video-si-muzica-ambientala-printre-sugestii\/\">Sector 3 |&nbsp;Consultare public\u0103 pentru modernizarea Parcului IOR. Alei din lemn, supraveghere video \u015fi muzic\u0103 ambiental\u0103, printre sugestii<\/a><\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>F\u00e2nt\u00e2nile arteziene din parcul Alexandru Ioan Cuza vor fi iluminate\u00a0luni, 9 iunie, \u00een culoarea turcoaz. \u00cen acest fel, se va marca Ziua Interna\u021bional\u0103 de Con\u0219tientizare a bolii Batten. Evenimentul din parcul Alexandru Ioan Cuza va atrage aten\u021bia asupra \u00eencerc\u0103rilor prin care trec pacien\u021bii diagnostica\u021bi cu boli rare, cum este Batten. Boala Batten Boala Batten este [&hellip;]<\/p>\n","protected":false},"author":49,"featured_media":133631,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"ngg_post_thumbnail":0,"footnotes":""},"categories":[6994,1,4,62],"tags":[21916,5726,4830],"ppma_author":[22574],"class_list":["post-133629","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-stiri-2","category-diverse","category-sanatate","category-stiri","tag-boala-batten","tag-ior","tag-parcul-alexandru-ioan-cuza"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v25.3 (Yoast SEO v27.4) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>F\u00e2nt\u00e2nile din parcul Alexandru Ioan Cuza vor fi iluminate\u00a0\u00een turcoaz, pe 9 iunie. 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